Children with Rare Disease - Search Videos

Leukodystrophy - Symptoms, Causes, Treatment | NORD

Leukodystrophy - Symptoms, Causes, Treatment | NORD

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Boy's story sheds light on struggle with rare disease

Boy's story sheds light on struggle with rare disease

3.8K views · 70 reactions | Treating children with rare diseases “is more than a job,” says Jerry Vockley, MD, PhD, director of the Center for Rare Disease Therapy. “You do it because you can’t imagine doing anything else.” Listen to Dr. Vockley talk about his approach to treating children with rare diseases as we celebrate Rare Disease Day 2019. #ShowYourRare #RareDiseaseDay | UPMC Children's Hospital of Pittsburgh | Facebook

3.8K views · 70 reactions | Treating children with rare diseases “is mo…

3.8K views2 weeks ago

FacebookUPMC Children's Hospital of Pittsburgh

31K views · 351 reactions | It's one of the scarier neurodevelopment...

31K views · 351 reactions | It's one of the scarier neurodevelopment...

31K views2 weeks ago

FacebookUT Southwestern Medical Center

3.6K views · 52 reactions | Meet rare disease researcher Maya Chopra! She specializes in the genetics of rare disorders, especially those affecting learning and development, and has helped families all over the world reach diagnoses. She hopes her work will lead to treatments for rare genetic disorders, including one she helped discover. Learn about her work and what inspires her at the link in bio.  | Boston Children’s Hospital | Facebook

3.6K views · 52 reactions | Meet rare disease researcher Maya Chopra! …

2K views1 week ago

FacebookBoston Children’s Hospital

85K views · 382 reactions | She has a rare disease called MPS1. This rare disease has no cure. Many other children are fighting against this same rare disease, and our mission is to raise awareness, provide hope, and fund a cure. Follow us to be a part of our journey! | The Kennedy Ladd Foundation, Inc. | Facebook

85K views · 382 reactions | She has a rare disease called MPS1. This r…

29.3K views4 weeks ago

FacebookThe Kennedy Ladd Foundation, Inc.

1.9K views · 23 reactions | Did you know that 75% of rare diseases...

1.9K views · 23 reactions | Did you know that 75% of rare diseases...

2K views2 weeks ago

FacebookMurdoch Children's Research Institute - MCRI

52K views · 151 reactions | WHO says rare inflammatory disease in …

52.9K views3 weeks ago

FacebookThe Economic Times

New rare disease discovered in teen brothers at BC Children’s Hospital

Children with rare genetic disease get world-first treatment to save si…

5.1K views | Reel by Albert Einstein College of Medicine

2K views3 weeks ago

FacebookAlbert Einstein College of Medicine

Only 30 children have been diagnosed with this rare genetic di…

Today is #RareDiseaseDay. For 3-year-old Christopher who was bor…

1.7M viewsFeb 28, 2020

FacebookOur Grandfather Story

Many parents of kids with rare diseases fight for research — eve…

TODAY.comMeghan Holohan

92K views · 2.6K reactions | Three-year-old Mila is facing a disease...

32.4K views3 weeks ago

FacebookKaitlyn Ross

7.9K views · 301 reactions | On this national Rare Disease Day...

2.5K views1 month ago

FacebookShriners Children's Chicago

29 reactions · 14 shares | Rare disease is draining the life out of …

272 views3 weeks ago

3 of 4 children in family have rare progressive disorder

9.6K views · 135 reactions | More than 400 million people worldwid…

2.9K views1 month ago

FacebookDavid Cameron

Only 70 people in the world have this rare gene mutation. Two of th…

ABC NewsMark Hanrahan

While we may think cancer is rare, it’s actually the number one caus…

210 viewsJan 25, 2023

FacebookChildren's Cancer Research Fund

What you should know about the rare new sickness affecting children

How can you tell if your child has rare syndrome linked to #COVID19…

17.2K viewsMay 24, 2020

FacebookCGTNEurope

For kids with rare genetic disorders, customized CRISPR treatments of…

The Disease That Makes Kids Age Like the Elderly: Progeria Explained

11 views1 month ago

YouTubeweird medical files

Biotechnology Innovation Organization on Instagram: "Child…

7.7K views3 weeks ago

Instagramiambiotech

A Kid with a Terminal Disease and the Parents Who Will Love Her For…

1.1M viewsDec 8, 2022

YouTubeSpecial Books by Special Kids

Science didn't understand my kids' rare disease until I decided to stud…

75.6K viewsJul 18, 2017

Nephrotic Syndrome 101 - Signs, Symptoms, Pathophysiology | Nati…

58.2K viewsApr 26, 2016

YouTubeNational Kidney Foundation

Family of toddler with ultra-rare disease sees signs treatment may …

CBS NewsLouisa Moller

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